De-identified My Health Record data is yet to be shared with researchers and public health experts almost five years after the former federal government revealed controversial plans to source datasets from the digital health record by default.
The revelation comes as the government ramps up its broader public sector data sharing scheme enabled by last year’s Data Availability and Transparency Act (DATA), with the first datasets expected to be released in the second half of this year.
In May 2018, the former Coalition government released a secondary data use framework for the My Health Record to carry out plans harboured since 2015 to share de-identified data by default, unless individuals manually opted out by changing their control settings.
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